Comments on: Newborn Genetic Screening in Minnesota http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/ How will it change your life? Mon, 16 Nov 2009 18:52:38 +0800 http://wordpress.org/?v=2.8.4 hourly 1 By: Drevis http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/comment-page-1/#comment-61114 Drevis Sun, 22 Mar 2009 19:13:07 +0000 http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/#comment-61114 I am an attorney and my wife a physician. We are having newborn genetic testing performed by a private company under contract. If you want to trust the government with your child's genetic information that is your choice. I have great faith in the medical establishment and no faith in our government. You decide what you want to do and that is your right. Do not presume to decide what is best for me and my family. I choose privacy and protecting my child's rights today and in the future. The government is not your only option for genetic testing and you can reap the full benefits of such in a private setting. It is too bad in my opinion that many people assume the government is the only avenue in this regard. Drevis I am an attorney and my wife a physician. We are having newborn genetic testing performed by a private company under contract. If you want to trust the government with your child’s genetic information that is your choice. I have great faith in the medical establishment and no faith in our government. You decide what you want to do and that is your right. Do not presume to decide what is best for me and my family. I choose privacy and protecting my child’s rights today and in the future.

The government is not your only option for genetic testing and you can reap the full benefits of such in a private setting. It is too bad in my opinion that many people assume the government is the only avenue in this regard.

Drevis

]]> By: American Journal of Medical Genetics Special Issue on Children and Genetics http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/comment-page-1/#comment-40924 American Journal of Medical Genetics Special Issue on Children and Genetics Mon, 28 Jan 2008 13:16:55 +0000 http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/#comment-40924 [...] Waiving informed consent in newborn screening research: Balancing social value and respect (Eye on DNA post 1, post 2) [...] [...] Waiving informed consent in newborn screening research: Balancing social value and respect (Eye on DNA post 1, post 2) [...]

]]> By: Lynette http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/comment-page-1/#comment-26747 Lynette Mon, 10 Dec 2007 13:56:10 +0000 http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/#comment-26747 Whoa......to the comment posted by Tom. You do have a point but I believe you are not seeing the whole picture here. I have a distinct fear when someone says that it's for my benefit or the benefit of my kids. Yes, I believe that the testing can find problems in newborns but I also do believe that the parents should be the ones to either accept or reject this. If this information is already being shared with others of the supposedly "medical community" for their advancement then why should the parents have to pay for it. How long will it be before this information creeps out into the hands of others or is being sold? How long will it be before we are all typed and tagged at birth like a herd of cattle. How long will it be before 2 people will not be allowed to be married because of incompatible genes. How long will it be before a baby will not be allowed to be born because of a bad gene or genes. Can you all see where this is headed? Thank you. Lynette Whoa……to the comment posted by Tom.

You do have a point but I believe you are not seeing the whole picture here.

I have a distinct fear when someone says that it’s for my benefit or the benefit of my kids.

Yes, I believe that the testing can find problems in newborns but I also do believe that the parents should be the ones to either accept or reject this.

If this information is already being shared with others of the supposedly “medical community” for their advancement then why should the parents have to pay for it.

How long will it be before this information creeps out into the hands of others or is being sold?

How long will it be before we are all typed and tagged at birth like a herd of cattle.

How long will it be before 2 people will not be allowed to be married because of incompatible genes.

How long will it be before a baby will not be allowed to be born because of a bad gene or genes.

Can you all see where this is headed?

Thank you.
Lynette

]]> By: Gene Genie #20 | The Molecular Biology Blog http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/comment-page-1/#comment-21318 Gene Genie #20 | The Molecular Biology Blog Mon, 19 Nov 2007 00:14:25 +0000 http://www.eyeondna.com/2007/11/14/newborn-genetic-screening-in-minnesota/#comment-21318 [...] There was much baby talk around the blogs. Breastfeeding & IQ & norm of reaction at the Gene Expression blog highlighted a study that showed breast-fed infants with one variant of the FADS2 gene, a regulator of fatty acid pathways, benefited from an improved IQ compared to formula-fed infants. Hsien-Hsien Lei took this one step further at Eye on DNA, exhaulting the known health benefits of breastfeeding, genetically influenced or otherwise. Also on the subject of babies, Hsien-Hsien highlighted the clash between recently passed genetic privacy laws and Newborn Genetic Screening in Minnesota. [...] [...] There was much baby talk around the blogs. Breastfeeding & IQ & norm of reaction at the Gene Expression blog highlighted a study that showed breast-fed infants with one variant of the FADS2 gene, a regulator of fatty acid pathways, benefited from an improved IQ compared to formula-fed infants. Hsien-Hsien Lei took this one step further at Eye on DNA, exhaulting the known health benefits of breastfeeding, genetically influenced or otherwise. Also on the subject of babies, Hsien-Hsien highlighted the clash between recently passed genetic privacy laws and Newborn Genetic Screening in Minnesota. [...]

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